Family Care (Famcare) is a board of IPWSO, designed to support families whose adult son or daughter lives at home.

If you have an older son or daughter - someone who has left school, but is still living at home - and need our help, please contact us.

We provide a range of downloadable guides and helpful documents that are available in a variety of language translations. 

Guidance for Families

Support for living with PWS

Learning that your child has Prader-Willi syndrome (PWS) can be devastating. Being given a label that you've probably never heard of before can turn your world upside down in an instant. The first thing to remember is that this is still your beautiful child who needs you now, more than ever.  Remember too that you are not alone.  IPWSO and the global PWS family are here to help and support you all the way.

We have collated a collection of information, practical how-to guides and downloadable resources to help support and enable a prepardness for dealing with and living with PWS throughout the critical stages of development. Take a closer look by clicking on the topics below. If you require any additional advice please contact us.

New Parents


Schools & Education

What is PWS?

PWS & the younger child



Further resources

The latest medical and scientific research  into common medical issues affecting people with PWS

Sharing international knowledge among professional service providers throughout the world 

Watch, discover & learn more from our collection of interviews, guides and fact-filled videos

Medical Professionals

Residential Caregivers

Youtube Videos

Get our email updates



Keep up to date with the latest news, stories and research from the PWS community.


Salisbury House
Station Road
Cambridge CB1 2LA

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Registered as a charity in England & Wales, charity no. 1182873